I am almost 5 years with arthrofibrosis from a knee replacement. I am at 3/80. The pain is unbearable. It has now moved up to my hip area along with the knee and my foot is asleep. I live alone. It is very hard Since some days. I can’t hardly walk.
I am just wondering if there is anything new out there. I have been looked at by a surgeon at Cedars Sinai and he is deciding whether he wants to go ahead and put in a hinged knee with some radiation and clear out the scar tissue. This would be something that’s been done before. I’ve had two complete replacement replacements on this knee.
The first knee replacement the surgeon didn’t move me for four days so that’s where I believe all of this begun. I have had many MUA’s and scar tissue removals done and I am in excruciating pain. I live on pain medicine. I have also had another complete revision. A whole new knee put in. By another surgeon, not the first surgeon. I would not let him touch me again.
I have kids and grandkids that I would love to spend some time with. I used to be 125 pounds and ran 5 miles a day and now I have handicap plates on my car and weigh 150 pounds.
I’m just looking for someone who can help me out because people with this problem just get ignored and shove aside and I feel very hopeless. But hey, they made me an appointment with a counselor in March 2026 so I could speak about not wanting to kill myself I guess wow. I’m glad the Mental Help is there for us.
If anybody knows of any help, I can get I would love it I am new on this site so I don’t know if I’m even posting this and that’s correct Place but I’m in need of help. My kids are worried about me and they don’t know how to help me. I’m so withdrawn from life that my friends are pretty much given up on me because I think they Think I’m just a flake now. I don’t show up where I’m supposed to be because I can’t. I simply can’t move like I used to. Any help is appreciated thanks.
I am so sorry you are going through this.
The mental toll is unbearable at times.
Have you seen Dr Noyes in Ohio?