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I was hit by a drunk driver in 2016, causing injuries that resulted in a total knee replacement in 2018. This is where my arthrofibrosis journey began, though I did not know it at the time. At age 45 my orthopedic surgeon did not want to do a replacement but all other conservative approaches had failed and my world was shrinking with pain and stiffness.

Fast forward to today as I am on the cusp of a 5th total revision out of state with my 4th surgeon, this one an expert in arthrofibrosis. All through these tough years I have had wonderful surgeons and consultants, was diligent with PT and home exercises. I’ve had 2 arthroscopic surgeries, 6 manipulations under anesthesia. One was followed with 3 days on epidural with CPM machine continuously running. I’ve tried the Dynasplints for flexion and extension. I’ve had Botox treatments in my quads and…

Hello, I had TKR on 4/1/2024 and developed severe arthrofibrosis almost immediately. I am allergic to surgical glue but there was an error made and it was used. My wound was an itchy blistered mess for a couple of weeks post op until I was able to pick the glue off. I have always had full extension but after surgery I am at about 30* flexion. I had two surgeons recommend manipulation under anesthesia but something inside told me this was wrong. I didn't do it and eventually had my records reviewed by Dr. Noyes in Cincinnati who advised me to continue with only gentle passive movement. Since surgery I have had massage by an orthopedic massage therapist/reflexologist who initially helped with lymphatic drainage and swelling. I'm finally beginning to feel like my arthrofibrosis is changingand beginning to loosen a bit. I know I have a long road ahea…

Hello all. Happy to have found this group and looking for any support or insight. I had an ACLR 5/2022 and 11/2022 had a second surgery for LOA, ended up with CRPS in my recovery. Fast forward and 11/2024 after much debate had another LOA. I had descent ROA and most of my scarring was medial/inferior and in Hoffa's fat pad. I had significant pain from a medial scar that was causing a bony defect in the femur. My surgeon (for this last surgery) is very familiar with arthrofibrosis and took an appropriate multidisciplinary approach. I felt well for the first few months and have taken recovery very slow (6 wk crutches, CPM 8 wk, gentle PT and slow progression with weight training/load) but unfortunatley over the last month (with no inciting event) I feel that my symptoms are returning (pain/stiffness, loss of extension, increased swelling). This happened last time…

The IAA warmly welcomes our new IAA Ambassador, Dr Seweryn Krzywoń from the Czech Republic! We look forward to collaborating with you to help arthrofibrosis patients and spread awareness.

Kayley

The IAA is delighted to welcome Megan Reese as an Ambassador! Megan is our first USA Ambassador and is committed to helping patients feel informed, empowered, and less alone in their journey with arthrofibrosis. You can read Megan’s story here https://azure-playroom-824.notion.site/Megan-s-Story-16053e39f35880fa9619f5f930bcb4d5

The IAA is incredibly proud of our passionate and enthusiastic Ambassadors who work to spread arthrofibrosis awareness and education. The first online meeting of Ambassadors was held recently, with all IAA Ambassadors attending (see screen shot, thanks Barbara!), getting to know each other and sharing great ideas. Thank you everyone!! I look forward to talking with you again.

Kayley

The IAA is delighted to welcome Dr Bartosz Rutowicz as an Ambassador! His expertise and experience as a physiotherapist will be valuable and we look forward to collaborating.

Kayley

The IAA warmly welcomes Nikos as an IAA Advisor. We look forward to working with him and drawing on his expertise as an experienced sports scientist and researcher specialising low intensity passive stretch.

Kayley

Greetings,

I discovered this website when searching for anything that could elucidate or help in my case. I am a 32-year old man from Brazil, and eight years ago (when I was 24), I accidentally fell down a flight of stairs and had torn 2 of my ankle ligaments (calcaneofibular and talofibular, I'm not sure if those are the right names in english, I apologize for that).

Anyways, I went to a doctor who was adamant that we should do reconstruction surgery as soon as possible, and so I did as I was told and fit as soon as I could on his schedule, which meant that I had surgery 1 month after my accident. I didn't do physical therapy or anything during this time period, except being immobilized with a cast while awaiting for surgery. Post-surgical recovery was a bit complicated but I moved on with my life, trying…