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NabiNabi
17 days ago · posted in Public

Second surgery to clear arthrofibrosis

Hii

About two and a half years ago, I underwent ACL reconstruction surgery and developed arthrofibrosis.

About a year and a half ago, I underwent an arthroscopic surgery to clean out the diffuse arthrofibrosis that was present in the knee.

The arthrofibrosis has returned again, and I was recommended to undergo another surgery for cleanup, and this time to take a medication called Losartan for six weeks following the surgery.

I would be happy to know:

Does an additional cleanup surgery pose too high a risk for another recurrence of the arthrofibrosis?


138 Views
kayleyusher
kayleyusher
Jul 25

Hi Nabi,

Your question about surgery is a difficult one, and there is no easy answer. However, it's important to have scans to make sure that the ACL graft has been positioned correctly. It can be helpful to see a different surgeon who is not associated with the first, to get advice on the ACL graft positioning.

After the scans you might consider arthroscopic arthrofibrosis surgery. However, surgery stimulates the healing response again, and arthrofibrosis is a condition of over-healing. So, as you have experienced, the outcome might not be good, and might even be worse.

If the surgeon follows the methods that are outlined in the Surgical Checklist, especially not using a tourniquet and not using a mechanical shaver, that reduces the risk since there is less damage done, but we still can't predict the outcome. It seems that the Hoffa's fat pad is almost always inflamed and fibrotic, and cutting it is not advisable.

Losartan was shown to reduce arthrofibrosis for some people in some research, but other research has not found a positive response. An individual's reaction to it likely depends on the biological pathways that are dysregulated, which determines what will help.

If you can find a surgeon who is willing to consider the arthrofibrosis-aware surgical methods then you might decide the risk is worth it. We're happy to meet virtually with a surgeon if they want to discuss this, and we can also point you to a couple of experienced arthrofibrosis surgeons in Europe and the US.

Please feel free to ask more questions.

All the best,

Kayley

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kayleyusher
June 26, 2026 · posted in Public

A short break

Hello, and thanks for your interest in the IAA. This is a courtesy note to inform you that the Directors are taking a short break until July 11th, and likely won't be able to respond to questions during this time. We hope this doesn't inconvenience you.

Kayley

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GardenerGardener
June 10, 2026 · posted in Public

Dental infection

Hello all, I’ve had arthrofibrosis for 6+ years now and am concerned that I have a dental infection that could go to the knee and require a revision. The thought of it is terrifying to me. I’ve been to the dentist, and he agreed that my concerns were legit and is sending me to an oral surgeon for a cone beam xray (CAT scan, basically called CBCT). Besides the pain in my tooth, my knee is only a little warm but is acting a bit more aggravated than usual. Every day that goes by I’m concerned that the infection may be getting worse. Any advice or do you have any knowledge of others’ experience with this?

168 Views
kayleyusher
kayleyusher
Jun 11

Hi Gardener,

I agree that infections in the mouth are a real risk for joints, especially when you have a prosthesis. I can't give medical advice, but I hope that your dentist has prescribed oral antibiotics that target the specific bacteria causing the infection. They may need to test what type of bacteria are there.

If you're taking antibiotics this should control the infection so it doesn't disperse in your blood and travel to your knee. However, if your knee develops more symptoms then it would be a good idea to have a needle aspiration of the synovial fluid in the joint, which is then tested for infection.

Your knee may feel worse for a while in any case, because your body's "army" (immune system) is fighting the infection in your mouth, and the "ammo" (inflammatory cytokines and cells) travel in your blood to your knee.

I hope that helps,

Kayley

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Mr. HopefulMr. Hopeful
May 30, 2026 · posted in Public

Experienced Surgeon with Arthrofibrosis Surgery in Turkey?

Hello! I was diagnosed with knee arthrofibrosis beginning of May 2026. I had a localized PVNS surgery back in 2022. I was able to achieve 120 degrees flexion after the surgery. Afterwards, I had an injury during a sports activity back in 2025 Feb. It led to pain &inflamation and my ROM reduced to 90 degrees. I have seen different Orthopedic Surgeons between 2025 Feb and 2025 July. Have taken two physical therapy as well during that time frame. I was diagnosed with arthroscopic fibrosis very recently by another surgeon (who did my PVNS surgery back in 2022). I hear experience in arthrofibrosis surgery is of crucial importance, have you heard of any surgeons with arthrofibrosis experience in Turkey? Thanks!

180 Views
Mr. Hopeful
May 31

Hi Kayley - Thanks very much for your feedback! Yes, the recurrence of the PVNS was ruled out with the latest MRI beginning of the month. I have a rheumatologist appointment for next week and am planning to ask her/him for a cytokine panel blood test as recommended in IAA website. My surgeon recommended physical therapy to me for 4-6 weeks to see if my knee condition will improve before a surgery decision is made. I will definitely ask my surgeon if he is open to engage with IAA. Thanks again!

Erkan

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kayleyusher

Doctor describes new research suggesting Ozempic has a protective effect on damaged cartilage

This interesting short YouTube video explores the origins of Ozempic (semaglutide) and how it appears to protect cartilage in joints, perhaps even permitting cartilage re-grow. The mechanism is independent of weight loss. See https://www.youtube.com/watch?v=JM1he4pHzpw


Please note - one of the referenced studies in this video used hyaluronic acid (HA) injections for osteoarthritis. Some forms of HA are well know to promote fibrosis and in my opinion its use in arthrofibrosis is not wise.


Kayley

193 Views

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kayleyusher
April 15, 2026 · posted in Public

MUAs - Manipulation under anesthesia for arthrofibrosis

See our new blog that summarises Dr Rosenberger's YouTube interview at https://www.arthrofibrosis.info/post/manipulation-under-anaesthesia-for-knee-arthrofibrosis

Or view the video at https://www.youtube.com/watch?v=7dN5OIohNm0


Kayley

221 Views
Gina Johns
Gina Johns
Apr 15

This was a great interview! I love to hear that Dr. Rosenberger is following the beliefs of the IAA. It makes me feel hopeful to see medical professionals acknowledging this condition after years of gaslighting. :)

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kayleyusher

Risks from injectable peptides

A Medical Xpress story summarises the risks associated with injectable peptides such as GHK-Cu, BPC-157 and TB-500, which are not approved for use in humans. See https://medicalxpress.com/news/2026-04-peptides-antiaging-trend-evidence-theyre.html?utm_source=nwletter&utm_medium=email&utm_campaign=daily-nwletter


Animal studies suggest that these peptides increase the production of several growth factors and cytokines that are key drivers of arthrofibrosis and cancer. BP-157 has been banned by all regulatory authorities. These peptides may also impact brain chemistry and there are reports of mood dysregulation, flu-like symptoms and joint pain.


In my opinion, it is not wise to try injectable peptides, especially if you have arthrofibrosis.


Kayley

175 Views
Gina Johns
Gina Johns
Apr 14

A lack of health care provider knowledge about arthrofibrosis can make us desperate to find a remedy but we've got to be careful.

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kayleyusher

The benefits of mindfulness meditation

The benefits of mindfulness meditation for physical and mental health are far reaching and well established. This Science X story discusses the role of acceptance in mindfulness https://medicalxpress.com/news/2026-03-benefits-mindfulness-meditation.html?utm_source=nwletter&utm_medium=email&utm_campaign=daily-nwletter


Acceptance of pain and disability does not mean giving up on improving your situation, but instead means noticing and accepting unpleasant experiences without fear or judgement.

Kayley

167 Views

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Heather Sherman
March 31, 2026 · posted in Public

Orthopedic Surgeons specializing in knee arthrofibrosis

My husband has knee arthrofibrosis and would like to meet with orthropedic surgeon in the united states. Dr. David Singleton has contributed to the site, but I cannot locate his contact information. Do you have any providers or centers you would recommend in the United States?

202 Views
kayleyusher
kayleyusher
Apr 01

Hi Heather,

Dr Singleton has retired from surgery, unfortunately. Dr Jason Dragoo in Colorado is an experienced arthrofibrosis surgeon who treats post-TKA knees. The IAA has an interview with him on YouTube. Dr Hackett also uses arthrofibrosis appropriate methods, but I understand he doesn't treat knees with a prosthesis.

I hope this helps,

Kayley

©2022-2026 by International Arthrofibrosis Association.

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