Stichting IAA Charity 

Objectives

The IAA has as its statutory objective the worldwide promotion of knowledge, awareness, scientific research, diagnostics, and treatment of arthrofibrosis, as well as the promotion of the well-being of people suffering from arthrofibrosis, and furthermore all that in the broadest sense is connected with, belongs to, and/or may be conducive to the foregoing.

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Board Members and Their Functions

​The board consists of the following members:​

• Kayley Margaret Usher – Chair

• Manon Raap – Secretary & Treasurer

• Sebastiano Nutarelli – Board Member

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The board members do not receive any remuneration for their activities. However, they may be reimbursed for expenses incurred, provided these can be substantiated.
 

Remuneration Policy

Board members do not receive any salary. Only reasonable and pre-approved expense reimbursements may be paid. No individual board member may independently commit to financial obligations. Personnel or services may only be hired if necessary, within non-profit budget standards.

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Activities

The IAA is committed to improving the lives of those affected by arthrofibrosis through a global, integrated approach. We raise awareness of this underrecognized condition and its impact on patients, while supporting and financing scientific research into its causes, diagnosis, and treatment. Through comprehensive education and training programs, we empower healthcare professionals and patients to achieve better outcomes.

We foster strategic collaborations with medical institutions, researchers, and advocacy groups worldwide, and actively advocate for the inclusion of arthrofibrosis in international classification systems such as ICD-11. In addition, we provide accessible resources, publish evidence-based educational content, and amplify patient voices through storytelling and media. Our ongoing initiatives, including the Ambassador Program and our yearly International Arthrofibrosis Awareness Day, build a strong, informed, and compassionate global community.

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An overview of the most important events and activities supported by the IAA world-wide is published yearly in the form of an Activity Report on this page.

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Fundraising

We fund our mission through donations, sponsorships, grants, gifts, and bequests, along with occasional income from educational materials and merchandise. The foundation operates without the intention of generating profits.

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Fund Allocation Policy

The IAA follows a strict fund allocation policy to ensure transparency, cost-efficiency, and maximum impact. All funds are directed toward the foundation’s core goals—research, education, training, and awareness on arthrofibrosis—while minimizing administrative costs through a primarily volunteer-based model. Paid roles are limited and modestly compensated, and volunteers are only reimbursed for agreed-upon expenses. Financial decisions require board consensus, no speculative investments are made, and surplus funds are responsibly reserved for future mission-aligned projects.

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Financial Accountability

The IAA maintains transparent financial records. Each year, we publish a financial report including:

• Balance sheet

• Statement of income and expenditures

• Disbursement register for payments exceeding 25% of annual budget

• Explanatory notes

The first financial report will be available before July 1st 2026.