Obtaining a Diagnosis
Hi .. I have just discovered this site in my search for possible answers for my symptoms.
I have had knee issues all my life. I had my first arthroscopy age 17. Seven more followed over the years with chondroplasty, debridement and lateral release procedures, then PRP injections and finally a TRKR in July 2023 (at 46 years old) as my OA was very advanced by this stage (bone on bone with spurs).
I lost all quad function for 5 weeks and struggled with my bend. I had intensive physiotherapy both with the NHS (I'm in the UK) and privately, with little improvement. I achieved around a maximum 70 degree bend before an MUA at 17 weeks post op. After this MUA I halted at 90 degrees and then went backwards, again despite ongoing intensive manual therapy and sport massage,
I underwent a revision procedure at 10 months post op where extensive, thick scar tissue was identified and partially removed. My surgeon said he had never seen anything like it. He, and the hospital physio, suggested a referral to Rheumatology as they believed my over production of scar tissue could indicate an auto immune condition. Over a year later, I have seen them and had blood tests. They say I show no signs of any auto immune condition and have discharged me.
Nobody has mentioned AF .. but all my symptoms seem to match with what I have read online during my months of research.
None of the medical professionals I have met on my journey so far seem to be aware of AF. Does anyone in the UK know of any surgeons/physios that I could seek help from? My left knee is rapidly deteriorating and my life is severely impacted by lack of mobility and pain. At this stage I just want a formal diagnosis and recognition of this condition.,
Many thanks, Suzanne
Hi Susanne,
I'm glad that you've found the IAA helpful! I can't vouch for anybody in particular in the UK, but I have heard that Glyn Evans performs arthrofibrosis surgery. I don't know his methods, but you could ask him if he uses the methods in the Surgery Checklist. I've also heard that the NDORMS, a part of the Medical Sciences Division of the University of Oxford, does arthrofibrosis research, so they might be able to help.
In my opinion another MUA would not be wise, due to the risk of complications.
All the best, and please feel free to ask questions.
Kayley