top of page

Groups Feed

View groups and posts below.

This post is from a suggested group

Brigitte Spee
18 days ago · posted in Public

Walking bike

This little walking bike has brought me (and my partner) 😀a lot of joy! Due to minimal flexion (30) walking outside, espacially on uneven surfaces, is a challenge. I use one crutch for shorter distances. But for longer walks, especially in european cities with historical pavements, my partner was always my support. Also he had to adapt to my low speed. Now he has to run after me as I speed over all the little bumps on the road, en we can cover more kilometers. We already crossed through Amsterdam, Perugia, Palermo, Edinburgh, Glasgow. We even use it in nature, when there are more or less straight paths. Hills are a problem, but we don't have a lot of them in Holland. It is allowed inside restaurants and shops, and also to take on a plane, although most airport officials are in full confusion when we present it, and the…

ree
ree

49 Views
kayleyusher
kayleyusher
Dec 03

Hi Brigitte,

Thank you so much for sharing this great tip!! This walking assistance tool sounds very helpful for people who need to take the weight off their knees.


If you're reading this and interested in a Van Raam, and you're in Australia, there is one new one still available from Cargo Cycles, it's possibly the last new one here. I bought the second-to-last one, thanks to Brigitte's heads-up : -)

Kayley

Edited

This post is from a suggested group

kayleyusher

Inflammation may be the link between chronic pain and depression

This story in Medical Xpress explains recent research showing the link between chronic inflammation, pain and depression. See https://medicalxpress.com/news/2025-04-inflammation-link-chronic-pain-depression.html?utm_source=nwletter&utm_medium=email&utm_campaign=daily-nwletter

for the full story.

103 Views

This post is from a suggested group

kayleyusher

See our new YouTube interview with leading surgeon Dr. Marco Valoroso, Head of Knee Surgery at EOC Hospital.

Visit https://www.youtube.com/watch?v=GAha434oQyQ to view the discussion on the diagnosis, underlying causes, and treatment strategies for arthrofibrosis following total knee replacement (TKR or TKA).

84 Views

This post is from a suggested group

kayleyusher

People with allergies or eczema may face higher risk of surgical complications

Medical Express News

by American College of Allergy, Asthma, and Immunology

edited by Stephanie Baum, reviewed by Robert Egan


Read the full story at https://medicalxpress.com/news/2025-11-people-allergies-eczema-higher-surgical.html?utm_source=nwletter&utm_medium=email&utm_campaign=daily-nwletter

97 Views
Pam Delucia
Pam Delucia
Nov 07

I have psoriasis and eczema. This study is interesting.

This post is from a suggested group

Erika

Info on GLP1 and AF

My good orthopedist (not to be confused with my surgeon) mentioned some researchon GLP1 and AF.


The studies I have found seem to focus on RA and osteoarthritis.


When the surgeon decided there was nothing else he could do for me the only suggestion he had was to see a different surgeon and do a complete revision and "make more room" for the adhesions. Though the other doctors I've seen say that based on the x rays, the positioning looks good.


I tried metformin for my last MUA with scope, but don't feel that it helped to stop new adhesions after the larger ones were removed.


100 Views
kayleyusher
kayleyusher
Nov 06

Hi Erica,

Thanks for your post! I agree that semaglutide (Ozempic and Wegovy) shows interesting potential for helping arthrofibrosis, and my next blog is on this topic.

In my opinion, the science doesn't support the idea of "making more room" for adhesions and scar tissue, or doing a revision TKA without a clearly identified issue with the current prosthesis. Having a lysis of adhesions (LOA) helps some knees when the methods outlined in the "Surgery Checklist" on this website are followed. I hope this helps.

Kayley

This post is from a suggested group

kayleyusher

Post by Karen

Post:

I am almost 5 years with arthrofibrosis from a knee replacement. I am at 3/80. The pain is unbearable. It has now moved up to my hip area along with the knee and my foot is asleep. I live alone. It is very hard Since some days. I can’t hardly walk. I am just wondering if there is anything new out there. I have been looked at by a surgeon at Cedars Sinai and he is deciding whether he wants to go ahead and put in a hinged knee with some radiation and clear out the scar tissue. This would be something that’s been done before. I’ve had two complete replacement replacements on this knee. The first knee Done and the surgeon didn’t move me for four days so that’s where I believe all of this begun. I have had many MUA’s and scar tissue removals done and I…

91 Views
kayleyusher
kayleyusher
Nov 05

Hi Karen,

I can’t give medical advice because I’m not a clinician, but in my opinion revision knee replacements should not be performed unless there is a problem with the existing prosthesis – that is, if the prosthesis is loose, infected, or there is a mechanical problem that is clearly identified in the scans. I don’t believe that revisions should be performed only because of arthrofibrosis and in our experience repeating the surgery that appears to be the initiating "insult" often doesn’t lead to better outcomes.

I’m aware there are cost barriers, but I feel that it’s important to obtain the opinion of an experienced arthrofibrosis surgeon who is prepared to treat post-knee replacement patients with arthrofibrosis. If you’re able to see the surgeon Dr Jason Dragoo in Colorado, I think that would be helpful. Alternatively, you could request a telehealth appointment with the European Knee Arthrofibrosis Centre (EUKAF), email info@eukafcenter.ch. They can review your scans and provide clinical advice. They may suggest tests for nerve damage and infection, if these haven’t been performed already.

Please know that, unfortunately, you’re not alone and this is not a rare problem. It is, however, a real and complex problem that requires expertise and understanding.

I hope the website helps, please feel free to ask questions. There are also IAA interviews with experienced arthrofibrosis surgeons and physiotherapists available on YouTube, see https://www.youtube.com/@Arthrofibrosis.

All the best,

Kayley

Edited

This post is from a suggested group

Karen SeeleyKaren Seeley

I am almost 5 years with arthrofibrosis from a knee replacement. I am at 3/80. The pain is unbearable. It has now moved up to my hip area along with the knee and my foot is asleep. I live alone. It is very hard Since some days. I can’t hardly walk.

I am just wondering if there is anything new out there. I have been looked at by a surgeon at Cedars Sinai and he is deciding whether he wants to go ahead and put in a hinged knee with some radiation and clear out the scar tissue. This would be something that’s been done before. I’ve had two complete replacement replacements on this knee.


The first knee replacement the surgeon didn’t move me for four days so that’s where I believe all of this begun. I have had many MUA’s and scar tissue removals done and I…

124 Views
anlaudun
Nov 05

I am so sorry you are going through this.

The mental toll is unbearable at times.

Have you seen Dr Noyes in Ohio?

This post is from a suggested group

Manon Raap
November 5, 2025 · updated the description of the group.

In this group, explore research updates on Arthrofibrosis.

179 Views
Gina Johns
Gina Johns
Nov 05

I'm curious if the IAA has ever created an arthrofibrosis patient survey? It would be interesting to compile data to research trends, etc.

This post is from a suggested group

Manon Raap

Welcome to our group Research News! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.

132 Views

©2022-2026 by International Arthrofibrosis Association.

bottom of page