A Milestone Moment: IAA Becomes a Registered Non-Profit

We are delighted to share some exciting news with our community — the International Arthrofibrosis Association (IAA) is now officially registered in the Netherlands as Stichting IAA Charity, a non-profit foundation (ANBI status).

This is more than just a legal milestone; it’s a major step forward in our mission to improve the lives of people affected by arthrofibrosis worldwide.

What This Means for Our Mission

Arthrofibrosis is a complex and often misunderstood condition. Too many patients face delayed diagnoses, limited treatment options, and a lack of awareness among both the public and healthcare providers. At the IAA, our mission is to change that — and now, as a registered non-profit, we are better equipped than ever to:

• Expand awareness campaigns so more people understand the signs, causes, and treatment options for arthrofibrosis.

• Support vital research to improve diagnostics, develop effective therapies, and refine surgical techniques.

• Educate healthcare professionals through resources, training, and collaboration.

• Partner with organizations and institutions worldwide to accelerate progress.

  
  

A Foundation Built on Transparency and Collaboration

The IAA is entirely volunteer-run. Our board members receive no salaries, and only pre-approved expenses directly related to our charitable activities are reimbursed. All decisions are made collectively to ensure openness, fairness, and the most efficient use of resources. The IAA follows a strict fund allocation policy to ensure transparency, cost-efficiency, and maximum impact. All funds are directed toward the foundation’s core goals while minimizing administrative costs. 

Our non-profit status also means we can now apply for grants, form partnerships more easily, and — for those who wish to contribute — accept donations. In the Netherlands, donations to Stichting IAA Charity may be tax-deductible, making it easier for supporters to help fund impactful work.

Looking Ahead

This milestone is not the end goal — it’s the beginning of a new chapter. With a stronger legal and organizational foundation, we can reach further, build stronger networks, and create lasting change for people living with arthrofibrosis.

We want to thank everyone who has supported us so far — patients, caregivers, researchers, and advocates — for helping us get to this point. Together, we can continue to make a difference.

📍 Learn more about Stichting IAA Charity and our mission here