Wishing you a lovely Christmas and a healthy and happy New Year
Dear IAA members,
Wishing you a lovely Christmas and a healthy and happy New Year.
All the best,
Kayley
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Hi,to make a 2 j and 7 months story short,i had an ACL en meniscus surgery in 2023,i had 3 surgery ‘s to remove a lot off scartissue,and it came back😌
Now i am waiting for a date to have surgery ,in Austria in Hochrum
But i have a question,i ead a lot about not using a shaver ,also about ‘ releasing’ the scartissue,my last surgery was a capsel releas’,all around the knee,is this the same ?
Thank you😘
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AlexIoT
18. Dez. 2025
Hi Katty,
am besten suchst du dir einen Arzt der es mit Hochfrequenzelektroden macht. Das stillt die Blutungen sofort. Die Theorie dahinter ist weniger Blut weniger Fibrose. Wie groß das die Evidenz ist kann ich dir nicht sagen.
In Deutschland kenne ich zwei sehr gute Ärzte die das machen.
Beste Grüße
Alex
Walking bike
This little walking bike has brought me (and my partner) 😀a lot of joy! Due to minimal flexion (30) walking outside, espacially on uneven surfaces, is a challenge. I use one crutch for shorter distances. But for longer walks, especially in european cities with historical pavements, my partner was always my support. Also he had to adapt to my low speed. Now he has to run after me as I speed over all the little bumps on the road, en we can cover more kilometers. We already crossed through Amsterdam, Perugia, Palermo, Edinburgh, Glasgow. We even use it in nature, when there are more or less straight paths. Hills are a problem, but we don't have a lot of them in Holland. It is allowed inside restaurants and shops, and also to take on a plane, although most airport officials are in full confusion when we present it, and the…
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kayleyusher
03. Dez. 2025
Hi Brigitte,
Thank you so much for sharing this great tip!! This walking assistance tool sounds very helpful for people who need to take the weight off their knees.
If you're reading this and interested in a Van Raam, and you're in Australia, there is one new one still available from Cargo Cycles, it's possibly the last new one here. I bought the second-to-last one, thanks to Brigitte's heads-up : -)
Kayley
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Post by Karen
Post:
I am almost 5 years with arthrofibrosis from a knee replacement. I am at 3/80. The pain is unbearable. It has now moved up to my hip area along with the knee and my foot is asleep. I live alone. It is very hard Since some days. I can’t hardly walk. I am just wondering if there is anything new out there. I have been looked at by a surgeon at Cedars Sinai and he is deciding whether he wants to go ahead and put in a hinged knee with some radiation and clear out the scar tissue. This would be something that’s been done before. I’ve had two complete replacement replacements on this knee. The first knee Done and the surgeon didn’t move me for four days so that’s where I believe all of this begun. I have had many MUA’s and scar tissue removals done and I…
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kayleyusher
05. Nov. 2025
Hi Karen,
I can’t give medical advice because I’m not a clinician, but in my opinion revision knee replacements should not be performed unless there is a problem with the existing prosthesis – that is, if the prosthesis is loose, infected, or there is a mechanical problem that is clearly identified in the scans. I don’t believe that revisions should be performed only because of arthrofibrosis and in our experience repeating the surgery that appears to be the initiating "insult" often doesn’t lead to better outcomes.
I’m aware there are cost barriers, but I feel that it’s important to obtain the opinion of an experienced arthrofibrosis surgeon who is prepared to treat post-knee replacement patients with arthrofibrosis. If you’re able to see the surgeon Dr Jason Dragoo in Colorado, I think that would be helpful. Alternatively, you could request a telehealth appointment with the European Knee Arthrofibrosis Centre (EUKAF), email info@eukafcenter.ch. They can review your scans and provide clinical advice. They may suggest tests for nerve damage and infection, if these haven’t been performed already.
Please know that, unfortunately, you’re not alone and this is not a rare problem. It is, however, a real and complex problem that requires expertise and understanding.
I hope the website helps, please feel free to ask questions. There are also IAA interviews with experienced arthrofibrosis surgeons and physiotherapists available on YouTube, see https://www.youtube.com/@Arthrofibrosis.
All the best,
Kayley
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Happy Holidays to you as well! Thanks for your support this year.