Hello everyone. I have been battling AF since 2014, and I didn't even know what I had because no one had the courtesy to tell me.
I had a Limb Sparing Surgery (LSS), that includes a TKR to remove a cancerous bone tumour (Osteosarcoma) from my tibia. My leg is locked in extension and no one will ever offer a surgery under the universal healthcare system that we have in the United Kingdom (NHS).
Hello everyone. I have been battling AF since 2014, and I didn't even know what I had because no one had the courtesy to tell me.
I had a Limb Sparing Surgery (LSS), that includes a TKR to remove a cancerous bone tumour (Osteosarcoma) from my tibia. My leg is locked in extension and no one will ever offer a surgery under the universal healthcare system that we have in the United Kingdom (NHS).
When conservative measures failed, my surgeon did absolutely nothing. I found now the only specialist in the United Kingdom, but sadly he only works privately. I can't get insurance because the condition will be considered pré-existent and now I'm unfit for work. Raising the money will be a huge challenge, but I think I deserve a chance.
It is frustrating that the NHS can get away with not offering any treatment since there are no NICE guidelines to treat AF.
I'm glad that I found this space when I can chat with others going through the same.
Best wishes to everyone fighting AF,
Florencia