Hello everyone. I have been battling AF since 2014, and I didn't even know what I had because no one had the courtesy to tell me.
I had a Limb Sparing Surgery (LSS), that includes a TKR to remove a cancerous bone tumour (Osteosarcoma) from my tibia. My leg is locked in extension and no one will ever offer a surgery under the universal healthcare system that we have in the United Kingdom (NHS).
When conservative measures failed, my surgeon did absolutely nothing. I found now the only specialist in the United Kingdom, but sadly he only works privately. I can't get insurance because the condition will be considered pré-existent and now I'm unfit for work. Raising the money will be a huge challenge, but I think I deserve a chance.
It is frustrating that the NHS can get away with not offering any treatment since there are no NICE guidelines to treat AF.
I'm glad that I found this space when I can chat with others going through the same.
I'm Drewe and Have been battling AF of the knee for 18 months. I'm about to have another surgery so the journey continues. This will be the 6th associated surgery but I feel better armed with good information than when I started.
I'm happy to share any of my experiences with anyone.
Hello everyone. I have been battling AF since 2014, and I didn't even know what I had because no one had the courtesy to tell me.
I had a Limb Sparing Surgery (LSS), that includes a TKR to remove a cancerous bone tumour (Osteosarcoma) from my tibia. My leg is locked in extension and no one will ever offer a surgery under the universal healthcare system that we have in the United Kingdom (NHS).
When conservative measures failed, my surgeon did absolutely nothing. I found now the only specialist in the United Kingdom, but sadly he only works privately. I can't get insurance because the condition will be considered pré-existent and now I'm unfit for work. Raising the money will be a huge challenge, but I think I deserve a chance.
It is frustrating that the NHS can get away with not offering any treatment since there are no NICE guidelines to treat AF.
I'm glad that I found this space when I can chat with others going through the same.
Best wishes to everyone fighting AF,
Florencia
Hi there,
I'm Drewe and Have been battling AF of the knee for 18 months. I'm about to have another surgery so the journey continues. This will be the 6th associated surgery but I feel better armed with good information than when I started.
I'm happy to share any of my experiences with anyone.